My name is Félix. I'm 8 years old and have autoimmune lymphoproliferative syndrome (A.L.P.S.) and histiocytosis.
For Félix, the trips to the hospital began in his first month of life. Following a biopsy, carried out after noticing that a small pimple hadn't disappeared, it was discovered that he had histiocytosis. This is a cellular anomaly that leads to a series of disorders.
The first four years of Félix's life were not an easy ride. Frequent hospitalizations for minor viruses, ear infections, colds and sinusitis were worrying. Félix could be hospitalized for three days for a simple ear infection. It was incomprehensible to his doctors that he was constantly, and to such an extent, ill. Research took a few years and led to a diagnosis of autoimmune lymphoproliferative syndrome (A.L.P.S.), an autoimmune disease for which Félix must be treated in immunology and hemato-oncology.
Thanks to research, a medication is now available that keeps Félix's immune system under control and stable, allowing him to enjoy the things he loves most: swimming with his family in the lake at the cottage, walking in the forest with his dog Shelby, having fun with his big sister Laurence and playing soccer. Resilient, capable and funny, Félix is also a very strong boy!
Thank you Fondation Charles-Bruneau for funding research in pediatric hemato-oncology!